CML Registry

History

CML management has been revolutionized over the last decade. In 2009, Quebec’s key opinion leaders (KOL) in CML, led by Drs Lambert Busque and Pierre Laneuville, came to the conclusion that the increasing complexity of CML management (growing number of TKI options, refined laboratory monitoring), coupled with the increased median survival of CML patients, called for the creation of an infrastructure that would allow a fast real-life picture of the current CML landscape in Quebec. The key idea was to collect baseline, treatment and outcome data of CML patients in Quebec by implementing a pan-provincial prospective and retrospective CML Registry.
 
The Quebec CML Registry was officially launched at the end of 2009. The first site (hospital) to be activated was Hôpital Maisonneuve-Rosemont (HMR), a hospital affiliated to the University of Montreal, and recognized for its leadership in hematology. Other sites were thereupon activated in an incremental fashion: 10 sites by the end of 2011, 17 sites by the end of 2013. The Quebec CML Registry now profits from the participation of hospitals affiliated to each of Quebec’s medical schools, and of the majority of the province’s regional community hospitals providing care to CML patients.
 
The enthusiastic participation of hematologists (and patients) across the province has led to the recruitment of more than 750 CML patients already, which corresponds to roughly half of the total CML population in the province. Moreover, given the number of newly activated sites and the number of sites that have recently manifested the desire to join the Registry, it is realistically anticipated that this Registry will capture more than 800 CML patients by the end of 2017 (80% of the total CML population).
 

Participating sites and local principal investigator

  • Hôpital Maisonneuve-Rosemont – Dr Lambert Busque
  • Hôpital général Juif – Dre Sarit Assouline
  • Hôpital Royal-Victoria – Dr Pierre Laneuville
  • Hôpital régional de Rimouski – Dre Katerine Marquis
  • L’Hôtel-Dieu de Québec – Dr Marc Lalancette
  • Hôpital Fleurimont – Dr Jean-François Castilloux
  • CSSS de Gatineau – Dr Khalid Azzouzi
  • Hôpital Charles-LeMoyne – Dr Pierre Desjardins
  • Centre hospitalier régional de Trois-Rivières – Dre Anouk Tremblay
  • Cité de la Santé de Laval – Dre Danielle Talbot
  • Hôpital Pierre-Le Gardeur – Dr Hossein Jamali
  • Hôpital régional de St-Jérome – Dr Ghislain Cournoyer
  • Hôpital Notre-Dame – Dr Harold Olney
  • Hôpital Ste-Mary’s – Dr Jaroslav Prchal
  • L’Hôtel-Dieu de Lévis – Dr Marc Lalancette
  • Hôpital de l’Enfant-Jésus de Québec – Dr Robert Delage
  • Hôpital du Sacré-Cœur de Montréal – Dre Inès Chamaki
  • Hôpital de Verdun – Dr Martin A. Champagne
  • Hôpital Honoré-Mercier – Dre Catherine Girard-Desbiens
  • Réseau de santé Vitalité Health Network / Centre hospitalier universitaire Dr-Georges-L.-Dumont – Dre Eve St-Hilaire (New participant site!)
  • Hôpital du Haut-Richelieu – Dre Annie Lacroix (coming soon)
  • Hôpital de Chicoutimi – Dre Sabina Rusu (coming soon)
  • Hôpital du Suroît – Dr Michaël Buck (coming soon)